The morning was so hectic. There were tons of Doctor’s and Nurses in the room all morning. They started a blood transfusion at 9 so that he would have some good blood in him for his Bone Marrow Biopsy that was scheduled for later in the day. They also did a chest x-ray to make sure that everything was ok to do the procedure.
After the blood transfusion was done, they gave him some “sleepy medicine”. They did the biopsy and also did a lumbar puncture to insert some chemo into the spinal fluid.
Today he got his “Beads of Courage”. He gets one bead for each new procedure, poke, transfusion, chemo, challenges and accomplishments. Every bead tells a story of hope, strength and courage. He is such a brave little boy and we have so much faith that he will beat this.
I went home that night and Jeff stayed with him. They were having “Boy’s Night”! Nanny and Poppy came to visit which was a nice treat. Tonight is when he had to start taking medicine orally. They started with the “pink stuff”. He HATES taking medicine, but he did it and everyone was so proud.
The nurses needed to do a blood culture, and since he was running a fever they couldn’t take it from the IV that had already been placed, so they had to poke his other hand. It took 4 nurses and Daddy to hold him down. He was so strong! His fever kept building, and the nurses were getting worried. They gave him some Tylenol. His fever didn’t break until about 2 am.
by evanshou