*Note: I changed the day to “8” as this is the day that goes along with his treatment plan. They start counting the first day that they start the chemo. I had been tracking days since we actually got the diagnosis.
Today is a big day! He is getting discharged today. They have to do some not so fun things first. He had to get more “sleepy medicine” and have another lumbar puncture. They inject more chemo into the spinal fluid. There aren’t currently any leukemia cells in there, but this is a place that they can “hide” and you do not want them in there. He also had to get another dose of the Vincristine which is the same first chemo drug he got.
They had to re-access his port, which they were going to do when he was under, but they forgot. So, the nurses had to do it which meant that they had to remove the bandage around his port and re-install a new needle into his port. He really freaked out about them taking the bandage off and that didn’t go over well. He was very brave. They stuck the new needle in and that was the easy part compared to getting the bandage off.
Getting ready to go home…
There was a home nurse that had to come to our house tonight to teach me how to give him an antibiotic at home. He has a bacterial infection and needs this antibiotic for 2 weeks. It has to be giving through an IV, so they left his port accessed so that we can do it at home. Who knew I was going to have to learn nursing? It is kinda scary because this is a set way that things Have to be done in order to be sterile. You have to do it in the exact order, with all of the alcohol, saline flushes, heparin… I will be happy when this is over. He needs it 3 times a day too, so one of those times is at midnight. Trying to remember the order while being half asleep isn’t the easiest either.
Tonight it took about 3 hours to finally get him to take his medicine. This has to somehow get easier….
by evanshou