Owen woke up this morning, hungry and asking for breakfast before even getting out of bed. When I wake him up to do his IV at midnight and 1 am, he asks for food then or talks about breakfast and what he is going to have. He eats so much at breakfast, but then this morning he complained of his belly hurting all morning. He kept thinking he had to go to the bathroom, or throw up, but neither was happening. It wasn’t until he finally took his medicine late morning, that not long after we saw all of the breakfast. I think we are now learning that even if he wants more, we have to really try to restrict how much he eats so that he doesn’t over do it. The nurses and doctors kept saying, “if he’s hungry, feed him… because soon enough, he won’t want to eat for days.”
The Physical Therapist came today to work with him on his leg strength and trying to get him to walk. She spent a lot of the time playing with him and trying to get him to do things to strengthen his legs without him thinking about it. He did really good. He really needs a lot of support from someone behind him holding his hips or arms, but he was using this little wagon we have to walk some. She thinks that they are more weak than anything… it has been so long since he has used them. It was so great to see him be a little mobile. She is going to come twice a week for probably the next 6 weeks. She was saying that sometime with the kids, when they are on the steroids they actually make the muscles weak (unlike how adults take them to get strong). The chemo also might be causing some joint pain too, so it is hard to say what the actual problem is. I just miss seeing him run around the house….
Owen really loves to do crafts and activities, so Nanny has been providing him with things to do every couple of days to keep him busy. Today we had a gingerbread house to put together!!! He loved it and had so much fun building it. 
Tonight he did awesome at taking his medicine. He took all 3 so quick and didn’t even flinch. Oh how I wish every medicine time would be that easy…
by evanshou
I am a friend of Jan and Russ. Your little guy is one strong “buddy”. Sounds like he gets that from his parents. It’s hard to stay strong, isn’t it? Somehow with the love of family and friends, we survive. Positive thoughts and prayers will, and have, been going out for you precious child.
Love that boy,s smile!
Hi Renee and family –
Just wanted to let you know I’m thinking about you all and sending thoughts and prayers to your little guy.
XOXO
Marnee
Nice to see a little bit of a smile there!
He is just adorable!
Good to see Owen having fun. We sent him a little something from the Magic Kingdom. Our love and thoughts are with all of you. Uncle Bill & Aunt Cathy