Great news… Owen has had 3 really good days in a row! He has been active, having fun, and enjoying some time with family. Saturday his cousins from Harrisburg came out for the day & we had a lot of fun. Sunday Renee was sick… so I took the boys to my parents to keep […]
Monthly Archives: January 2013
Not much to report. My parents came again today for a little visit. Owen absolutely LOVES going in to the basement and playing with Pap Pap. I think it is great! He’s got a big day tomorrow… my brother and his family are coming tomorrow, so Owen gets to see his cousins. He is really […]
Another good day here at the Evans house. Played all.day.long. Yesterday when we were at the hospital we caught up on the beads of courage. I fill out the chart each week, but we usually don’t take it in all of the time, so when we do, we get a ton. He had fun filling […]
Last spinal tap for a couple of weeks! That is such a nice thing. It is so hard to watch him get put under the sedation, so it will be nice to have a little break. He has one more week in this second phase (Consolidation) and then he starts Interim Maintenance. It will be […]
After stopping at Owen’s school yesterday, it got me really thinking that we need to try to get into some kind of schedule like they do at school. That way, he can know what to expect, and hopefully get back into normal sleeping. This afternoon, we had some storytime, and this was the story he […]