Well, we made it through the weekend without ending up in the hospital. Owen’s mouth sores are still there, but we have been managing the pain. He hasn’t used too much pain medicine, and has gotten a lot better at swishing the mouthwash.
Saturday we did something really fun for the boys… took them to Idlewild! Neither had been to an amusement park before, and they both loved the rides!! Owen even got his face painted like Spiderman! Although, with no nap, something happened when we got home, and a little breakdown occurred… hence the running paint.
Sunday was spent recovering from the busy day on Saturday. We put the pool out and they kids were soaking it up! Pretty much the same today, but Nana and Pap Pap came for a visit.
Pretty excited for Wednesday. It marks the last day for Owen’s intense treatment. After this phase he moves into Long Term Maintenance. It will still consist of taking chemo drugs by mouth daily, and monthly visits to the hospital for chemo, but it will be a much needed relief for the constant weekly trips. Long Term Maintenance will last for another 2 1/2 + years. We still have a long road ahead, but it will be so nice to be out of the really rough stuff.
by evanshou
What a cute little Spiderman! Good luck tomorrow! What a relief to be through this phase!