Happy Monday! Today starts the really rough part of Owen’s treatment. The next three weeks are going to be hell. This week we go today, Wednesday and Friday for Erwinia (the drug that he is getting because he was allergic to the PEG), next week we go Monday, Wednesday (which is a whole list of […]
Yearly Archives: 2013
What a beautiful weekend in Pittsburgh. We spent as much time as we could outdoors. It makes us all feel so much better! Owen felt pretty good all weekend. This morning he complained that his heart was beating fast again. It seemed a little fast, but we couldn’t tell exactly with the stethoscope. It really […]
He was feeling pretty good today! He was ready to go outside early this morning since the sun was shining. I had to keep him busy to let it warm up a little out there first. We went out after they both took a little nap and had a blast. We played in the driveway, […]
I was really not looking forward to getting Owen to the hospital today, but he did pretty good. He put up fights each step of the way, but didn’t completely resist. I think it is so much easier when we go in to the clinic… he knows the nurses, he knows his Doctor it is […]
Well, we spent pretty much the whole day in the ED (Emergency Department). Owen’s heart went into SVT again this morning, but this time I couldn’t get him out of it. I had him do all of the things they tell you to do, headstand, blowing through straws/bubbles/candles, coughing, ice bath on his face and […]