Friday was Owen’s last appointment for the Interim Maintenance Phase and we got some good news and some not as good news. The good news was that they wrote us a script for Physical Therapy, and they held off giving him the Vincristine on Friday due to his dropped leg. Then the not so good news… well, the Doctor last week had said that we weren’t going to start the next phase until March 27, but since they didn’t do the Vincristine this week, they are wanting to start it on the 20th of March instead. Not as much of a break as we originally thought. They will only start the next phase if his counts are good, but chances are they will be alright. Especially since this weeks medicine wasn’t that bad. They didn’t increase the Methotrexate this week either.
Another thing we learned was that after Delayed Intensification, we go back into the phase we were just in (Interim Maintenance) before we go into Maintenance. I don’t know why, but I was under the impression that once we made it through Delayed Intensification we would be kinda “home free”. That things would start getting easier. They will do the same as they did for this phase where they increase the Methotrexate each week so we will have the risk of the mouth sores again. I just pray that we make it through Delayed Intensification without too many hospital stays.
On to the happy stuff. He has felt super all weekend! And, it was a nice spring teaser weekend here in Pittsburgh, so that made it even better. Saturday and Sunday we got to spend a lot of time outdoors and Owen had a blast playing with our neighbors. He got to ride his “new to him” bike from his cousin Jack and rode it well! Looking forward to a good week ahead.
by evanshou
Great to see you this weekend!! Owen rocks his new bike!!!
Great to see Owen out and about and enjoying these nice days!! Thanks for keeping us updated….We Miss You Renee!