Owen’s Leukemia – Day 141

Back to the hospital today for another round of the Erwinia.  His appointment was at 1, but they wanted us there before noon so they could draw his bloodwork.  They send it to the lab stat, but that means the lab has 60-90 minutes to get the results back.  The longer we wait for the results, the longer we wait for him to get his medicine.  His counts were fine so they were good to give the chemo.

It goes in over an hour, then they monitor him for an additional hour after that.  He seemed to be doing fine until 45 minutes in… he got sick again.  This time I was pretty sure it was the drug and not what he ate, like I thought on Monday.  He got sick at the same point in the infusion, and his Doctor came in and stopped the medicine.  He said vomiting is one of the reactions if you are allergic and being that this is the 3rd time that he has got sick with the asparaginase it is most likely that he is allergic to it.  The Doctor doesn’t want to give him any more of it.  He was scheduled to get 4 more doses, but they are going to cancel them.

We are concerned because we know this is an important drug, but his Doctor assured me that he is going to be getting a lot more medicine and he already has received a few doses of this drug, so it shouldn’t put him at a greater risk of relapse.

Other than being sick, he had a pretty good day.  We dropped Logan off at daycare this morning and Owen got to go in and say “hi” to his friends.  On the way home from the hospital we were going to pick Logan up and Owen was pretty insistent about wanting to go in and play with his friends some more.

We still have to go back to the hospital on Friday for some bloodwork and for them to check him out, so they left him accessed.  He will get the tubies out for the weekend and we will not have to go back to the hospital again until next Wednesday.