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Last Spinal Tap

December 4, 2015 was Owen’s last spinal tap!  Such an exciting day.  No more chemo injected into his spinal fluid.  He told all of the doctors that he was going to fight the sleepy medicine and wasn’t going to sleep.  Well, we all know how that turned out.  Upon waking, he said “Did I win?”.  He is only out for about 15 minutes, and the hardest part is once he wakes up he has to lay down flat for a half hour.  He is always still out of it for about an hour after, so trying to explain to him that he has to stay down is so difficult.  He says some of the sweetest things, like “Mommy, I love you.”, but there are other things that come out his mouth that you wonder what they do see when they are sedated.  He asked me to put the umbrella up this time, and as usual, everyone has multiple eyes and two heads.  I will not miss these sedation treatment days… no matter how often you see them, it is never easy watching them put your child to sleep.  That thought of what if something happens is always in your mind.  Hopefully he will only need sedated one more time, to take his port out.

He has been feeling pretty good since Friday.  Just the normal sleepiness that is associated with the Chemo.  We had a fun weekend of cutting down our Christmas tree, a birthday party and decorating gingerbread houses.  Everyone here is ready for Christmas!  Owen’s next treatment was scheduled to fall on New Year’s Day, but due to the holiday, they moved it till January 8.  This will be his last dose of chemo administered at the hospital.  He will then continue with his at home chemo until January 23.  I can’t believe that we are getting so close to the end!!!

December 2015

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