We received a special package today. It was from England! A little back story… I started a photography project on 365 project last year. You take a picture a day and upload it to this website, and you can follow all different photographers from all over the world. I love this project so much because […]
Owen seemed to have so much energy today. He was even trying to “run”. It’s not really running, as his legs still aren’t back to where they were, but a huge improvement. He got this soccer ball from the treasure chest at the hospital yesterday, and was pretending like he was playing on his soccer […]
Another spinal tap today. We got in the room for the procedure, and Owen was napping even before they came in to give him the sedation. He was making up for not napping yesterday. The Cardiologist that was there to do the sedation changed up his sedation meds due to his SVT. They are just […]
Lots of fun yesterday, playing with crafts and cleaning… Today we had an extra special day. It was his first playdate since before he was diagnosed. He had so.much.fun!!!! A little back story, after he was diagnosed, I was contacted by the mom of one of Owen’s friends from school. She explained that she was […]
It was pretty uneventful around here today, which is always a good thing. As of today, Owen only had one band-aid left on his body. It was located over his port from where he was accessed when he was in the hospital at the beginning of the week. It is the only one we didn’t […]
