Happy Monday! Today starts the really rough part of Owen’s treatment. The next three weeks are going to be hell. This week we go today, Wednesday and Friday for Erwinia (the drug that he is getting because he was allergic to the PEG), next week we go Monday, Wednesday (which is a whole list of […]
Category Archives: Bad Days
Well, we spent pretty much the whole day in the ED (Emergency Department). Owen’s heart went into SVT again this morning, but this time I couldn’t get him out of it. I had him do all of the things they tell you to do, headstand, blowing through straws/bubbles/candles, coughing, ice bath on his face and […]
We had a clinic visit today. He was scheduled to get PEG- L-asparaginase this morning. They do it by IV and it takes one hour to infuse. They monitor his vitals every 15 minutes for 2 hours, and for the first 15 minutes, the nurse needs to stay in the room. This is because it […]
I didn’t know if I should mark this as a good day or bad day. We had moments of each. Probably more good than bad. Over the past couple of days, his left leg has been “dropped”. It doesn’t really hurt him per say, but it just drags when he walks. Today he really seemed […]
Through the night on Tuesday was pretty rough. He didn’t sleep much and was in so much pain. The whole night we kept checking his temperature to make sure he didn’t get a fever. We also kept debating if we should just take him to the ED or try to wait it out until […]