Happy Monday! Today starts the really rough part of Owen’s treatment. The next three weeks are going to be hell. This week we go today, Wednesday and Friday for Erwinia (the drug that he is getting because he was allergic to the PEG), next week we go Monday, Wednesday (which is a whole list of […]
Category Archives: Chemo
I was really not looking forward to getting Owen to the hospital today, but he did pretty good. He put up fights each step of the way, but didn’t completely resist. I think it is so much easier when we go in to the clinic… he knows the nurses, he knows his Doctor it is […]
Back to the hospital. I feel like we are always there… the lady reassured me that there are definitely others in the same boat. It is so sad that there are so many families that have to endure this journey. I also feel so fortunate that we have such a wonderful, supportive group of family […]
We had a clinic visit today. He was scheduled to get PEG- L-asparaginase this morning. They do it by IV and it takes one hour to infuse. They monitor his vitals every 15 minutes for 2 hours, and for the first 15 minutes, the nurse needs to stay in the room. This is because it […]
Start of Delayed Intensification. Owen wasn’t allowed to eat or drink anything today because of his spinal tap. His appointment wasn’t until 2:00pm, so he was not a happy boy. I felt so bad for him because he was so hungry. We tried to let him eat late last night, but that really didn’t help […]