Friday was Owen’s last appointment for the Interim Maintenance Phase and we got some good news and some not as good news. The good news was that they wrote us a script for Physical Therapy, and they held off giving him the Vincristine on Friday due to his dropped leg. Then the not so good […]
Today was a sedation and chemo day. Owen wasn’t allowed to eat after 11 pm last night, and previously, he really hasn’t minded not getting to eat on days he gets spinal taps, but this morning, he wasn’t very happy that he wasn’t allowed to eat. I felt so bad, he kept asking for breakfast… […]
Today was a hospital day. He was very brave and took the access to the port well. He is still afraid that it is going to hurt, but because he has the numbing cream it is more of a mental thing than actual pain. We asked them about the leg pain, and they said a […]
Today was filled with Doctor’s appointments. We started off this morning at the Cardiologist clinic. The nurses were going to attempt to give him an EKG (which would have meant lots of stickers all over) and after a lot of high pitched screaming, they opted not to do one. They wanted one of him in […]
will be the end of Owen’s treatment. It seems like forever! He will be in 1st grade and will know so much more than he knows today. It is almost as long as he has been alive. So many things go through my head to think about this number…. but I need to stop. We […]
