Turned out to be quite an interesting day. We went to the hospital this morning to start our long day there. They started us off in the infusion room so they could start hydrating Owen. They took his blood and he had some time to play before they could start anything. They had a little […]
Back to the hospital today for another round of the Erwinia. His appointment was at 1, but they wanted us there before noon so they could draw his bloodwork. They send it to the lab stat, but that means the lab has 60-90 minutes to get the results back. The longer we wait for the […]
Happy Monday! Today starts the really rough part of Owen’s treatment. The next three weeks are going to be hell. This week we go today, Wednesday and Friday for Erwinia (the drug that he is getting because he was allergic to the PEG), next week we go Monday, Wednesday (which is a whole list of […]
I was really not looking forward to getting Owen to the hospital today, but he did pretty good. He put up fights each step of the way, but didn’t completely resist. I think it is so much easier when we go in to the clinic… he knows the nurses, he knows his Doctor it is […]
Well, we spent pretty much the whole day in the ED (Emergency Department). Owen’s heart went into SVT again this morning, but this time I couldn’t get him out of it. I had him do all of the things they tell you to do, headstand, blowing through straws/bubbles/candles, coughing, ice bath on his face and […]
