Back to the hospital. I feel like we are always there… the lady reassured me that there are definitely others in the same boat. It is so sad that there are so many families that have to endure this journey. I also feel so fortunate that we have such a wonderful, supportive group of family […]
Category Archives: Hospital
We had a clinic visit today. He was scheduled to get PEG- L-asparaginase this morning. They do it by IV and it takes one hour to infuse. They monitor his vitals every 15 minutes for 2 hours, and for the first 15 minutes, the nurse needs to stay in the room. This is because it […]
Start of Delayed Intensification. Owen wasn’t allowed to eat or drink anything today because of his spinal tap. His appointment wasn’t until 2:00pm, so he was not a happy boy. I felt so bad for him because he was so hungry. We tried to let him eat late last night, but that really didn’t help […]
Friday was Owen’s last appointment for the Interim Maintenance Phase and we got some good news and some not as good news. The good news was that they wrote us a script for Physical Therapy, and they held off giving him the Vincristine on Friday due to his dropped leg. Then the not so good […]
Today was a sedation and chemo day. Owen wasn’t allowed to eat after 11 pm last night, and previously, he really hasn’t minded not getting to eat on days he gets spinal taps, but this morning, he wasn’t very happy that he wasn’t allowed to eat. I felt so bad, he kept asking for breakfast… […]