Today was filled with Doctor’s appointments. We started off this morning at the Cardiologist clinic. The nurses were going to attempt to give him an EKG (which would have meant lots of stickers all over) and after a lot of high pitched screaming, they opted not to do one. They wanted one of him in a normal state, but the doctor ended up saying that after looking at his files, they already had enough information from the hospital ones. So what we learned from the Cardiologist… he was born with this extra electrical connection in his heart. It is not something that has anything to do with the Leukemia or the port… he would have most likely experienced the SVT sometime in his life if he had not already. It usually appears at 3 different age groups (babies, 5-7, and 14-16, I think those are right, but don’t quote me on that). He is not in any of those age groups, but the port most likely brought these instances on. There are 2 ways to treat SVT, medicine (which his is doing) or a catheter ablation. He is going to stay on the medicine for now, but if he keeps having episodes, the ablation might be the next option. The thing with the ablation is that it is a surgical procedure. So, we would rather not go that route, but I guess we’ll see how he does over the next few months. We go back in 4 months to see him again.
Next stop, Nanny and Poppy’s house! Logan was there being watched, so we stopped in for lunch and to play for a little while before heading to the hospital. The hospital was fine. The hardest parts are getting the numbing cream on his port before we leave, and them accessing his port when there. Other than that, the chemo is kinda anti-climactic. The just push some medicine through his tubies using a pump, and 15 minutes later, we are ready to go. They say that the next few days he might not feel the best, so hopefully it won’t be too bad.
Here he is looking super cute with his Dad. (the fluorescent yellow liquid going through the tube is the Methotrexate. He has fun watching it go through the syringe all the way through the tubes to him.)
by evanshou
What if you slept in the bottom bunk bed a few nights? It might be enough to break the cycle. Plus the only feet in your face will dangle from above.
PS I haven’t forgotten your paint.
Try a sticker chart…Owen loved getting stickers for good behaviors and achievements while he was here.
Fill it up each day he sleeps on his own and place a picture of a toy or whatever he would like to get at the end so he can see how close he is to getting his prize.
Thanks Jessica!
Oh he’s so darling!! He looks so happy with his new bed. Glad to see that he’s improving. We are all thinking of him!
Ms Brandi