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  • Hello, and thanks for joining me on my journey.

    This is Owen. He is a 3 1/2 year old boy who is loving, energetic and loves to have fun. He was diagnosed with Leukemia on November 18, 2012. This is his story.

Owen’s Leukemia – Day 36 (Start of Consolidation)

So, today starts the next phase of treatment.  It is called Consolidation.  It lasts for 28 days.  They say for the little kids that it is not that bad of a phase…. although I guess it is all how you look at it.  He gets 3 spinal taps this month where they inject the chemo into the spinal fluid.  That means that he has to be sedated every week for 3 weeks.  Today was the first of those 3.  He had to fast for 8 hours prior, and our appointment wasn’t until 12:30 pm today.  That made for a crabby little boy by the time we got there and they wanted to start poking and prodding.

He did awesome, and went out relatively easy.  The Anesthesiologist is great… he is a really nice guy, patient, and completely on top of things at all times.  He is so good with the kids.  Owen wasn’t out for too long, but they make him lay on his back for 30 minutes once he comes out of the sedation so that he doesn’t get a headache.  This was not making him happy, as all he wanted to do was eat and go home.

The rest of today he did really good.  He slept for the car ride home, but then once here, he was pretty active.  Cooking up a storm in his kitchen and singing some songs on his microphone.  He got a special visit this evening from a neighbor boy whom has been clear of Leukemia for 2 years now.  He was diagnosed in high school and has just graduated Penn State.  It was so nice of him to stop by and give Owen some words of encouragement.  Owen was being shy, but he definitely appreciated the visit.  What a nice kid, and he has such a positive outlook on life.  I am sure when you go through what they do, you really appreciate everything a whole lot more.

Merry Christmas!

Merry Christmas!!!  We had a wonderful Christmas.  Owen had a blast!!!!  He walked more today than we have seen him walk since before he was diagnosed.  He was having fun cooking at his new kitchen that Santa brought him.

I love that the dogs were so played out that Simon actually fell asleep on the barrel full of monkeys…

Tomorrow we are back to the hospital for some Vincristine (chemo) and another spinal tap.  The bad part is that the procedure is not until 12:30 pm and he can not eat for 8 hours prior.  SO, tomorrow morning is going to be challenging.  We need to keep him occupied so he doesn’t keep asking for food.  Hopefully we will get some news tomorrow on results from last week.

I hope everyone had a spectacular Christmas!!!

KimDecember 26, 2012 - 2:43 pm

Glad you guys had such a full and fun Christmas!

Owen’s Leukemia – Day 34

Today I feel very blessed.  I have such a wonderful, loving family and we had an amazing day.  We have sang songs, played with the train, watched the Charlie Brown Christmas, and had a yummy dinner.  All of these wonderful things have me coming back to this statement that I have heard several times,,  “I can not even imagine what you are going through.”  Yes, it is true, it is hard to believe that we are having to go through this, and I would not wish this on any family, but tonight I think this very same statement about all of those families in Connecticut.  I feel very fortunate that tonight, I have my sweet little boy upstairs in my bed, and tomorrow, I get to see his beaming face when he looks at the tree.  For those in CT, they will not have that privilege.  Yes, it is going to be a long 3 to 3 1/2 years, but we WILL beat this.  We will still be able to enjoy life with this amazingly strong boy.

Tonight, I pray that all of those going through difficult times find the strength to look towards God for help.  He has a plan, and we must follow along the way.  Merry Christmas to all!!!  Hug your loved ones extra long, as you never know how long you will get to spend with them.

 

LanDecember 25, 2012 - 12:54 am

Nee,
Your words are inspiring. Wish we could be together with a nice big Mitch Miller sing-along. Merry Christmas! Love you, Lan

Laura ParkerDecember 26, 2012 - 12:03 pm

Happy holidays to the Evans family! Thanks for sharing this link with me. I have been thinking about your family so very much. What a strong and courageous boy you have – who must take after his wonderful family. Best wishes for a healthy and happy 2013.

Owen’s Leukemia – Day 33

Well, no walking again today… not sure what it is that one day his legs feel good and the next he says they hurt.  Today I was wondering if it was because he did so much walking yesterday.  You know how when you exercise after not exercising for a while, the next day your muscles are all sore?  Hopefully tomorrow we will be back to walking.

Poppy gave us a train to put up for the boys, and they have been loving it!!!  We have spent a lot of time watching it go around, and Owen likes to fill the cars with his little people.

KimDecember 24, 2012 - 4:27 pm

Looks like he’s having a great time!

Owen’s Leukemia – Day 32

It almost seemed like Owen didn’t have Leukemia today.  He didn’t have to take any medicines.  This is the “break” week in between Induction (the first phase of treatment) and Consolidation (the next phase) and so the only medicine he has to take is Bactrim.  He only takes that on M,W,F so it was a nice day off.  He had so much more energy today too.  He woke up, saw the snow outside and said “I want to go play in the snow!!”

After breakfast, we all got dressed and headed outside.  Owen was doing some walking by himself, and was having so much fun playing in the snow.  We were so proud of how well he was walking.  His legs are still really weak, but he is working on getting them strong.  He knows it is hard work, but he keeps at it.

Look at this smile….  how could you not love this boy?

PattyDecember 22, 2012 - 9:31 pm

Love that smile he looks excited to be playing in the snow.

shirleyDecember 23, 2012 - 6:49 pm

Sp nice to see Owen smile.
Had a good time in the snow.

Amy ADecember 23, 2012 - 10:41 pm

Oh he’s so cute! Thank you for sharing this journey with us. I think of you often and am always praying for little Owen. Hugs, Amy Arendt